Collaborative research with stakeholder organizations


This section introduces case studies of collaborative research with multi-stakeholders in the field of rare and intractable diseases (NANBYO) that can be made public.Also, projects and studies for which confidentiality agreements have been signed are not listed. (Last update date: September 22, 2022) 

 

2022年

2022-09-13 Lecture at the 3rd Biobank Forum 【University】【biobank】【presentation】

2022-09-11 GIST Advisors Meeting Held. 【GIST】【advisory meeting】【planning and operation】【facilitator】

2022-09-03 Lecture at Kobe Kaisei junior and high school high school【RDD】【presentation】

2022-09-02 Kids Doodle Party at the Aozora Republic (October 9, Hokuto City, Yamanashi) 【All NANBYO】【pediatric】【workshop】【art museum】

2022-08-20 RDD High School Initiatives Presented with High School Students at the Hyper Interdisciplinary Conference. 【domestic conference】【high school】【RDD】【poster presentation】

2022-07-31 The First RDD Japan High School Summit was held. 【high school】【RDD】【summit】

2022-07-07 Discussion with students at Osaka Meisei High School high school【RDD】【Study tour】

2022-07-01 Presentation at ECRD 2020 conference (2 posters) 【international conference】【poster presentation】

2022-06-30 [Press Release] STEP LEARNING Website, an Information Portal Site Responding to the "Want to Know" of People with Rare and Intractable Diseases, is Now Open. 【STEP】【website】

2022-06-25 Lecture at the 69th Annual Meeting of the Japanese Society of Child Health 【domestic conference】【presentation

2022-06-25  [Press Release] "T-Style Read Aloud Instructional App for web" for teaching and supporting dyslexia is now available. 【dislexia】【medical institution】【website】

2022-06-15 Participated in the RDI membership meeting 【global patient community】【invited participation】

2022-06-13 Lecture at Osaka Meisei High School 【high school【RDD】presentation

2022-06-04 Organized the joint art exhibition and interactive art appreciation workshop with the 64th Annual Meeting of the Japanese Society for Child Neurology. 【domestic conference】【workshop】

2022-05-25 Lectured at the Japan Pharmaceutical Manufacturers Association, Committee for Promotion of Patient Group Collaboration. 【industry community】【presentation】

2022-05-11 【Press Release】"Ne, Asobo," an Information Portal Site for Play for Severely Mentally and Physically Handicapped Children and Children in Medical Care, is Released 【children with medical care】【website】

2022-04-22 Article published in Rare Disease and Orphan Drugs Journal. 【global patient community】【research article】

2022-03-30 Participated as a panelist at the PhRMA PAC Roundtable. 【industry community】【panel discussion】

2022-03-29 RDD Tokyo extravaganza: Dialogue planned and conducted.【 RDD】【university】

2022-03-28 Participated in Webinar "Radio PPI" at the 6th Patient and Public Involvement Study Group 【PPI】【invited participation

2022-03-24 The Japanese text of the resolution adopted by the UN General Assembly on December 16, 2021, is now available. 【UN】【report】

2022-03-23 Participated in the evaluation committee on the JPA support program. 【patient association】【report】

2022-03-22 Article in AMED Public Relations Magazine.newspapers, magazines, media】【article】

2022-03-20 APEC ACTION PLAN ON RARE DISEASES is now available in Japanese 【APEC】【report】

2022-03-14  Lectured at a corporate-sponsored seminar. 【industry】【presentation

2022-03-09 Participated in IRDiRC meeting 【global research community】【invited participation

2022-03-09 Lectured at RDD Hamamatsucho Building 【RDD】【presentation

2022-03-07 Lecture at RDD Tottori 【RDD】【regional community】【presentation

2022-02-28 Supported Illumina Corporation's RDD Global Campaign. 【RDD】

2022-02-14 RDD Press Seminar was co-hosted with Pfizer 【industry】【RDD】planning and operation

2022-02-06 RDD Symposium was co-hosted with Takeda Pharmaceutical Co., Ltd. 【industry】planning and operation【RDD】【facilitator】

2022-02-06 Oral presentation at the 36th Society of NANBYO Centers

 

2021年

2021-12-24 Organized a webinar for high school students held on RDD2022 high school【RDD】planning and operation

2021-12-24 ASrid Cooperated in a dialogue project hosted by a company. 【industry】planning and operation

2021-12-24 【Press Release】Announcement of STEP (Strategic Translational Action for Empowering Patients) Establishment, Information Community for Rare Disease Stakeholders【All NANBYO】【STEP】

2021-12-21 第80回日本公衆衛生学会総会にて研究成果を発表しました high school】【planning and operation

2021-12-21 Organized a webinar for high school students held on RDD2022 high school【RDD】planning and operation

2021-12-20 Organized a webinar for high school students held on RDD2022high school【RDD】planning and operation

2021-12-16 Organized Study tour for RDD high school students (Sakata-Nishi high school) high school【RDD】【Study tour】

2021-12-15 Organized a webinar for high school students held on RDD high school【RDD】planning and operation

2021-11-19 Presentation at the 9th conference for Japan NANBO Medical Network domestic conference】【children with medical care】【presentation award】

2021-11-13 Organized Study tour for RDD high school students (Kakogawa Minami high school) high school【RDD】【Study tour】

2021-11-07 Report on the Results of the Questionnaire Survey on Employment of People with Intractable and Chronic Diseases (First Report)" has been releasedAll NANBYO】【labor】【report】

2021-11-06 Organized as an executive committee organization at the Japan NANBYO Patient and Family Conference 2021 【All NANBYO】【planning and operation

2021-11-05 An article was published in the "Community Care" 【industry journal】【article】

2021-11-04 Organized Study tour for RDD high school students (Kobe Kaisei high school) 【high school】【RDD】【Study tour】

2021-11-01 Presentation at PPI JAPAN Dialogue Meeting【PPI】【presentation

2021-10-29 Presentation at the 39th Annual Meeting of the Japanese Society of Neurological Therapeutics 【domestic conference】【presentation

2021-10-25 Session Chair/Moderator for the 18th DIA Japan annual meeting 2021 【industry community】【moderator】【session chair】

2021-10-24 Presentation and attended the panel discussion at the Global Patient Advocacy Leadership Summit: Asia Pacific Regional Session 【international conference】【panelist】

2021-10-22 Lecture at Sakatanishi high school high school】【presentation

2021-10-06 Facilitator for a company-sponsored dialogue project 【industry】【facilitator】

2021-10-02 Online poster presentation at the 13th conference for the Japanese Association of Health Communication 【domestic conference】【COVID19】【oral presentation】

2021-09-21 Lecture at Kakogawa-Minami High School high school】【presentation

2021-09-15 RDD High School Study tour was held, cohosted with Kobe Kaisei high school high school【RDD】【Study tour】

2021-09-11 RDD High School Study tour was held, cohosted with Osaka Meisei high school high school【RDD】【Study tour】

2021-08-19 Have Organized a Workshop on Play and Care for Children with Severe Physical and Mental Disabilities and Children in Medical Care for 3 months 【children with medical care】【play】【workshop】planning and operation

2021-08-13 Organized a Webinar on Play and Care for Children with Severe Physical and Mental Disabilities and Children in Medical Care 【children with medical care】【play】planning and operation

2021-08-07 Discussion with students at Kobe Kaisei junior and high school high school【RDD】【Study tour】

2021-08-05 Organized Study tour for RDD high school students (Osaka Meisei Gakuen)【high school】【RDD】【Study tour】

2021-07-28 ASrid's activities were introduced in "Genetic Disorders Plus". newspapers, magazines, media】【article】

2021-07-27 Discussion with students at Osaka Meisei High School 【high school】【RDD】【Study tour】

2021-07-22 Participated in Annual meeting of Pelizaeus-Merzbacher disease and related disorders research group as a research collaborator 【resarach community】【Pelizaeus-Merzbacher disease

2021-07-17 Lecture at Kobe Kaisei junior and high school high school【RDD】presentation

2021-07-16 Presentation at the 3rd DIA Japan Patient Engagement Webinar 【industry community】【presentation

2021-07-08 Lecture at Osaka Meisei High School 【high school【RDD】presentation

2021-07-01 The final version of the "Survey on the Impact of Novel Coronavirus Infection (COVID-19) on Patient groups/associations with Rare and Intractable Diseases" conducted by ASrid is now available. 【COVID19】【All NANBYO】【domestic trend】【report】

2021-06-30 Online Roundtable Discussion on "Research on the Impact of COVID-19 on Patients and Families with Rare and Incurable Diseases" is now available. 【COVID19】【All NANBYO】【domestic trend】【symposium】

2021-06-24 The final version of the "Survey on the Impact of Novel Coronavirus Infection (COVID-19) on Patients and Families with Rare and Intractable Diseases" conducted by ASrid is now available. 【COVID19】【All NANBYO】【domestic trend】【report】

2021-06-08 A comprehensive patient exploratory survey on Glycogenic Disease Type 1a has been conducted and a list of national medical institutions has been compiled.【Glycogenosis type 1a】【exploratory study

2021-06-02 Presentation at the Pfizer in-department seminar 【industry】presentation

2021-05-26 Participated in the RDI membership meeting 

2021-05-07 The preliminary version of the "Survey on the Impact of Novel Coronavirus Infection (COVID-19) on Patients and Families with Rare and Intractable Diseases" conducted by ASrid is now available. 【COVID19】【All NANBYO】【domestic trend】【report】

2021-04-30 Participated in RDD Global Steering Committee 【RDD】【invited participation】

2021-04-23 Presentation at the 2nd DIA Japan Patient Engagement Webinar 【industry community】【presentation

2021-04-04 Part of the COVID19 survey conducted by ASrid was published in a weekly magazine. newspapers, magazines, media【article】

2021-03-29 Participate in the working group of the Inclusive Academic Project (Inclusive Design in Science Education Environment). 【university】【invited participation】

2021-03-28 Presentation at the 5th Annual Meeting of HAE Forum 【HAE】【domestic conference】【presentation

2021-03-26  Publish a report; "The contributions of the intermediate organization -MHLW’s "daytime activity support” to revise the fees for welfare service for persons with disabilities" 【multi-stakeholders】【children with medical care】【report】

2021-03-21 Review meeting with high school students who held RDD2021 【high school】【RDD】【planning and operation

2021-03-10 Lecture at RDD Hamamatsucho-Building.【 RDD】【presentation

2021-03-07 Lecture at RDD Telemedicine.【 RDD】【presentation

2021-02-28 Lecture at RDD Tottori.【regional community】【univerisity【RDD】presentation

2021-02-16 RDD Press Seminar was co-hosted with Pfizer 【industry】【RDD】planning and operation

2021-02-14 RDD Symposium was co-hosted with Takeda Pharmaceutical Co., Ltd. 【industry】【RDD】planning and operation

2021-02-11 Presentation at the 24th JTTA Annual Academic Conference 【domestic conference】【presentation

2021-02-09 Participated in the APARDO AGM【asia-pacific patient community】【invited participation

2021-01-24 Participated in the patient advisory meeting 【industry】【panelist】

2021-01-23 Presentation at the Mitochondrial Disease Research Open Forum 【research community】【presentation

2021-01-15 Conducted a study tour for high school students, for the purpose of holding RDD at the high school 【high school】【RDD】planning and operation

2020年

2020-12-22 Conducted a study tour for high school students, for the purpose of holding RDD at the high school  high school【RDD】planning and operation

2020-12-20 Participated in Pelizaeus-Merzbacher disease and related disorders research seminar as a research collaborator 【research community】【Pelizaeus-Merzbacher disease

2020-12-15 Webinar was held with high school students hosting RDD. high school【RDD】planning and operation

2020-12-13  Conducted a study tour for high school students, for the purpose of holding RDD at the high school 【high school【RDD】【planning and operation】

2020-12-09 Presentation at the APARDO Conference 2020 【international conference】【presentation

2020-12-06 Participated in the patient advisory meeting 【industry】【panelist】

2020-12-04 Presentation at the 2nd Asia Pacific Patients Congress【international conference】【presentation

2020-11-29 An article was published in the "Jikkenigaku" (Journal of Experimental Medicine). newspapers, magazines, media】【寄稿文】

2020-11-23 Invited to join the Duke-NUS Patient Engagement Roundtable 2020 【international conference】【invited participation

2020-11-18 Organized a webinar for high school students held on RDD high school【RDD】planning and operation

2020-11-17 Organized a webinar for high school students held on RDD high school【RDD】planning and operation

2020-11-11  Organized a webinar for high school students held on RDDhigh school【RDD】planning and operation

2020-11-10 Organized a webinar for high school students held on RDD 【high school【RDD】planning and operation

2020-11-09 Participated as a panelist at the 17th DIA Japan annual meeting 2020 【industry community】【panelist】

2020-11-09 Presentation at the 17th DIA Japan annual meeting 2020 【industry community】【presentation

2020-11-07 The report about COVID-19 prepared by ASrid was featured on NHK News newspapers, magazines, media【news】

2020-11-07 Organized as an executive committee organization at the Japan NANBYO Patient and Family Conference 2020 【All NANBYO】【planning and operation

2020-11-07 Survey of Patients and Families with COVID-19 Infections: Preliminary Report is now available 【COVID19】【All NANBYO】【domestic trend】【report】

2020-11-01 Presentation at the 35th the Japan Society for Research Policy and Innovation Management. 【univerisity】【domestic conference】【oral presentation

2020-10-28 Invited lecture at Kakogawa−Minami High Schoolhigh school【RDD】presentation

2020-10-13 A Commentary was published in the Japan Society of Clinical Trials and Research 【domestic research journal】【article】

2020-10-08 Presentation at the Sanofi JPAC Townhall meeting 【industry】presentation

2020-10-06  Presentation at the Health Policy Academy, organized by HGPI【think tank】【presentation

2020-10-02 Participated in IRDiRC annual meeting 【global research community】【invited participation

2020-09-28 Presentation and attended the panel discussion at the PPI Japan Study group 【PPI】【presentation

2020-09-10 Presentation and attended the panel discussion at the HMIC 2020 Conference 【industry community】【presentation

2020-09-10 Invited to join the ISPOR Patient Representatives Roundtable– Asia-Pacificinternational conference】【invited participation

2020-08-28 Presentation at the 1st DIA Japan Patient Engagement Webinar 【industry community】【presentation

2020-08-28  Presentation at World Orphan Drug Congress USA 2020 【international conference】【presentation

2020-08-21 An introductory article on ASrid has been published. newspapers, magazines, media【article】

2020-08-19 Recommendations from overseas organizations (RDI and EURORDIS) related to COVID-19 have been updated. 【COVID19】【All NANBYO】【global trend】

2020-08-07 The research paper was published in the Journal of Health Sciences 【JRARE】【research paper】

2020-08-04 An introductory article on ASrid has been published. newspapers, magazines, media【article】

2020-07-20 Invited lecture at Osaka Meisei High School 【high school】【RDD】【presentation

2020-07-09 Invited lecture at Study Group Meeting 【industry community】【presentation

2020-07-01 Invited lecture at Annual Meeting of the Japanese Society of Toxicology 【domestic conference】【presentation

2020-06-29 Participated the WHO Focus Group Discussion 【WHO】【invited participation】

2020-06-17 The interview article was posted on the NCD Alliance Japan website newspapers, magazines, media【think tank】【article】

2020-05-29 Preliminary results of the survey of "A study on the QOL of children under medical care and their families in a medical short-term care facility” are now available 【children with medical care】【QOL】【research】

2020-05-15 Presentation at ECRD 2020 conference (3 posters) 【Distal Myopathy】【RDD】【researcher-patient】【univerisity】【international conference】【poster presentation】【Selected poster】

2020-05-11 Recommendations from overseas organizations (NORD and EURORDIS) related to COVID-19 are summarized. 【COVID19】【All NANBYO】【global trend】

2020-05-10 The manuscript was published in the Gene Medicine MOOK No. 35 newspapers, magazines, mediaMitcondrial disease【寄稿文】

2020-05-04 The Economist re has been added to the "International Reports on NANBYO (Rare and Intractable Diseases)" page newspapers, magazines, media【article】

2020-03-14 Participated in IRDiRC Web meeting 【global research community】【invited participation

2020-02-28 Presentation at Takeda Pharmaceutical Company Limited 【industry】【RDD】【presentation

2020-02-18 Presentation at RDD Hamamatsucho-Building 【RDD】【presentation

2020-02-14 Participated in a panel session on the press seminar hosted by Kyowa Kirin Co., Ltd. 【industry】【panelist】

2020-02-13 Presentation at MICIN, Inc 【industry】【RDD】presentation

2020-02-13 Lecture at Sagami Women's University Junior High School 【junior high school】【presentation

2020-02-04 Presentation at RDD2020 press seminar hosted by Pfizer 【industry】【RDD】presentation

2020-02-01 Moderating RDD seminar at Takeda Pharmaceutical Company Limited 【industry】【moderator】

2020-01-30 Presentation at Amicus Therapeutics, Inc. 【industry】presentation

2019年

2019-12-22 Participated in pre-campaign of RDD Osaka Meisei Gakuen 【high school】【invited participation

2019-12-21 Corporated with an RDD charity golf competition 【industry】【charity competition】

2019-12-12 Held an RDD 2020 Sponsor Day 【industry】【networking】

2019-12-05 Participated in the pre-campaign of RDD Hamamatsucho building 【RDD】【social awareness campaign】

2019-11-21 Participated in IRDiRC Consortium Assembly Meeting 【global research community】【invited participation

2019-11-16 Invited to a dinner at the Embassy of the United States 【patient group】【domestic conference】【oral presentation

2019-11-13 Presentation at IAPO Asia-Pacific Patients Congress in Taiwanglobal research community】【presentation

2019-11-12 Booth exhibition at 16th DIA Japan annual meeting 2019 【industry community】【exhibition】

2019-11-09 Organized an exhibition session at the Japan NANBYO Patient and Family Conference 2019 【All NANBYO】【exhibition】

2019-11-01 Presentation at Nobelpharma Co., Ltd. 【industry】presentation

2019-10-19 Presentation at APARDO Summit 2019 in Taiwan 【global patient community】【presentation

2019-10-09 Presentation at CSL Behring Inc. 【industry】presentation

2019-10-05 Held "Doodle Kids Party" at the Aozora Republic 【All NANBYO】【pediatric】【workshop】【art museum】

2019-09-24 Conducted a study tour for high school students, for the purpose of holding RDD at the high school 【high school】【RDD】【Study tour】

2019-09-21 Presentation at 8th China Rare Disease Summit in China 【international conference】【presentation

2019-09-15 Planed and acted as the chairperson of an extension lecture on the 19th Conference on CRC and Clinical Trials international conference】【public lecture】【planning and operation】

2019-09-14 Participated in the NCD Alliance Japan workshop【think tank】【invited participation

2019-09-14 Moderating a symposium at the 19th Conference on CRC and Clinical Trials 【international conference】【session chair】

2019-08-22 Participated in the first working group about inclusive design construction in science education environment 【univerisity】【invited participation】

2019-08-01 Lectured on NANBYO for elementary school students and parents at Peptide Dream Co. 【industry】presentation

2019-07-28 Participated in the NCD Alliance Japan workshop 【think tank】【invited participation

2019-07-27 Organized ODOD2019 workshop 【multi-stakeholders】【workshop】

2019-07-24 Participated in PPI Consortium in Japan launch meeting, as an initial member 【PPI】【planning and operation

2019-07-19 Lecture at Kobe Kaisei junior and high school high school【RDD】presentation

2019-07-13 Participated in Pelizaeus-Merzbacher disease and related disorders research seminar as a research collaborator 【reeearch community】【Pelizaeus-Merzbacher disease

2019-07-01 Patient and Public Involvement Consortium in Japan was established 【PPI】【planning and operation】

2019-06-17 Lecture at Osaka Meisei High School 【high school【RDD】presentation

2019-05-02 Facilitated the group discussion at the ICOSEP Annual Membership Meeting 2019 【international conference】【facilitator】

2019-04-12 Presentation at World Orphan Drug Congress USA 2019 【international conference】【presentation

2019-04-11 Patient and family talk session at RDD Tokyo was featured in Medical Note newspapers, magazines, media【article】

2019-03-16 Presentation at RDD University of Tokyo, Graduate School of Pharmaceutical Sciences 【univerisity【RDD】presentation

2019-02-27 RDD2019 Press Seminar was held 【industry】【RDD】【press seminar】

2019-02-19 RDD Japan was introduced at The Chunichi Shimbun newspapers, magazines, media【RDD】【article】

2019-02-17 Presentation at RDD University of Tokyo, Graduate School of Pharmaceutical Sciences 【RDD】【univerisity】【presentation

2019-02-17 Presentation at Rare Disease Informatics 2019 meeting 【research community】【presentation

2019-02-16 Participated in RDD Meisei High School 【high school【RDD】presentation

2019-02-16 Lecture at Mitochondrial Disease Research Open Forum.research community】【presentation

2019-02-08 Presentation at RDD Hamamatsucho-Building 【RDD】【presentation

2019-02-01 "Rare diseases feature" was released on CareNet.com  newspapers, magazines, media【article】

2019-01-19 Presentation at RDD JCR Pharma Ashiya Public Lecture 【industry】【RDD】【presentation

2019-01-04 An article on RDD Japan was published in Mainichi Newspaper newspapers, magazines, media【article】

2018年

2018-12-15 Oral presentation at the Smips (Society for management of intellectual properties)research community】【presentation

2018-12-11 RDD2018 Sponsor Day was held  【industry】【RDD】【networking】

2018-12-06 Participated in the 13th IRDiRC Consortium Assembly Meeting 【globalresearch community】【article】

2018-11-11 Booth exhibition was held at the 15th DIA Japan annual meeting industry community】【exhibition】

2018-11-07 Oral presentation at the Pharma Delegates Special Seminar 【industry community】【presentation

2018-11-04 Oral presentations at the 30th Society of NANBYO Centers 【domestic conference】【oral presentation

2018-11-02 Conducted a study tour for high school students, for the purpose of holding RDD at the high school【high school】【RDD】【Study tour】

2018-10-28 Oral Presentation at the Open Lecture for Citizen, 12th International BMP Conference 【international conference】【FOP】【public lecture】【presentation

2018-10-03 Contributed a report on Japan's efforts to the UDNI Newsletter 【globalresearch community】【article】

2018-09-20 Yukiko Nishimura had a presentation at the ICORD 2018 【international conference】【presentation

2018-09-18 Lecture at Norwegian National Advisory Unit on Rare Disordersuniverisity】【presentation

2018-07-28 ASrid organized ODOD2018 workshop 【muilti-stakeholder】【workshop】

2018-07-12 Yukiko Nishimura gave a lecture at the Patient Forum organized by Eli Lilly Japan K.K. 【industry】presentation

2018-07-09 ASrid gave a lecture at Osaka Meisei High School 【high school【RDD】presentation

2018-06-15 Yukiko Nishimura participated in a panel session on the summit organized by MetLife 【industry】presentation

2018-06-01 ASrid launched the Oral History project for leaders in the NANBYO patient associations 【univerisity】【oral history】

2018-05-12 Yukiko Nishimura and Shun Emoto had a poster presentation at the ECRD 2018, respectively international conference】【genome ELSI】【poster presentation】

2018-04-26 Yukiko Nishimura gave a presentation at World Orphan Drug Congress USA 2018 【international conference】【presentation

2018-04-19 Shun Emoto facilitated the group discussion at the ICOSEP Annual Membership Meeting 2018 【international conference】【facilitator】

2018-04-15 ASrid's activity was posted in the Journal of Industry-Academia-Government collaboration (published by Japan Science and Technology Agency) newspapers, magazines, mediaarticle

2018-03-14 Yukiko Nishimura elected as Vice Chair of the Patient Advocacy Constituent Committee, IRDiRC 【global research community】

2018-02-25 RDD Japan was introduced at Medical Tribune newspapers, magazines, mediaarticle

2018-02-20 RDD Japan was introduced at Heart Net Website newspapers, magazines, media【RDD】article

2018-02-20 RDD Japan was introduced at Heart Net TV, NHK E-tele newspapers, magazines, media【RDD】【TV】

2018-02-10 Shun Emote and Yukiko Nishimura had a poster presentation at the Society of NANBYO Centers, respectively 【university】【AMED】【genome ELSI】【domestic conference】【oral presentation】

2018-02-07 Shun Emoto had a presentation at an event organized by NPO Citizen's Science Initiative Japan 【citizen's NPO】【presentation

2018-02-05 Yukiko Nishimura had a presentation at RDD CMIC Holdings, Co., Ltd. 【industry】presentation

2018-02-01 RDD2018 Press Seminar was held 【industry】【RDD】【press seminar】

2018-01-31 Yukiko Nishimura gave a presentation at the 3rd committee for "Survey on Patient and Public Involvement in Clinical Research etc.”, organized by AMED 【AMED】【presentation

2018-01-21 ASrid’s Activity was introduced to the Mainichi Newspaper newspapers, magazines, mediaarticle

2017年

2017-12-12 RDD Sponsor Day, the first attempt at RDD Japan, was held. 【industry】【RDD】【networking】

2017-12-09 ASrid organized ELSI Workshop Vol.4 【AMED】【genome ELSI】【workshop】

2017-11-18 ASrid organized ELSI Workshop Vol.3 【AMED】【genome ELSI】【workshop】

2017-11-14 ASrid put up the exhibition booth at 14th DIA Japan annual meeting 【industry cmmunity】【exhibition】

2017-11-09 Yukiko Nishimura had a presentation at JCR Pharmaceutical Co., Ltd. 【industry】presentation

2017-11-05 Shun Emoto had a presentation at the 28th Conference of the Society of NANBYO Centers 【domestic conference】oral presentation

2017-10-29 Shun Emoto had a presentation at the 32nd Japan Society for Research Policy and Innovation Management. 【univerisity】【domestic conference】【oral presentation

2017-10-25 J-RARE was featured in Nikkei Medical Journal newspapers, magazines, mediaarticle

2017-10-14 ASrid organized ELSI Workshop Vol.2 【AMED】【genome ELSI】【workshop】

2017-09-20 Shun Emoto had a presentation at Novo Nordisk, Inc. 【industry】presentation

2017-09-16 ASrid organized ELSI Workshop Vol.1 【AMED】【genome ELSI】【workshop】

2017-09-14 An article of Rare Disease Day was published in the Nihon Keizai Shimbun. newspapers, magazines, media【article】

2017-09-09 Yukiko Nishimura had a presentation at the ICORD international conference】【presentation

2017-09-09 Shun Emote and Yukiko Nishimura had a poster presentation at the ICORD 2017, respectively. 【international conference】【poster presentation】

2017-09-02 Yukiko Nishimura had a presentation at the 17th Conference on CRC and Clinical Trials 2017 in Nagoya 【domestic conference】【oral presentation

2017-08-28 Lecture at Shire Japan K.K. 【industry】presentation

2017-07-22 ASrid organized ODOD2017 workshop【multi-stakeholder】【workshop

2017-07-17 ASrid organized ELSI Workshop as a kickoff meeting 【AMED】【genome ELSI】【workshop】

2017-06-05 Yukiko Nishimura had a presentation as a lecturer at the employee workshop at Nagahama Zeroji Club. 【citizen's NPO】【workshop】

2017-04-21 Yukiko Nishimura gave a presentation at World Orphan Drug Congress 2017 international conference】【presentation

2017-04-15 An article of ASrid was published in the information magazine "Manekineko" organized by VHO-netnewspapers, magazines, media【article】

2017-04-11 Yukiko Nishimura gave a presentation at GLOBIS MBA School 【MBA】【presentation

2017-03-19 ASrid hold a debrief meeting (FY15-16) about the J-RARE project (funded by MHLW), Yaesu, Tokyo MHLW funded research】【JRARE】

2017-03-11 Shun Emoto had a presentation at the 5th ICOSEP Annual Meeting 【international conference】【presentation

2017-02-25 Yukiko Nishimura had a presentation about J-RARE at the Mitochondrial diseases patients forum organized by the AMED MITO research group. 【Mitcondrial disease】【MO bank】【presentation

2017-02-09 Yukiko Nishimura had a presentation at the 3rd IRDiRC conference 【global research community】【presentation

2017-02-04 Kunihiro Nishimura had a presentation about the introduction of ASrid, Rare Disease Day, and J-RARE at the training workshop organized by Tokyo Rare and Intractable Diseases Support Center.【Toky metropolitan NANBYO support center】【RDD】【JRARE】【presentation】

2016年

2016-12-20 ASrid was offered a subsidy from AMED research grant 【AMED】【genome ELSI】

2016-11-19 Yukiko Nishimura facilitated the workgroup discussion at RD Asia Conference 2016 【international conference】【facilitator】

2016-11-15 Rare Disease Day Japan Secretariat office (inside NPO ASrid) put up the exhibition booth, and also moderated the chat session at the 13th DIA Japan annual meeting. 【industry community】【RDD】【moderator】

2016-11-11 Yukiko Nishimura gave a presentation at the inaugural meeting of, the NGO Committee for Rare Diseases 【UN NGO】【invited participation】【oral presentation

2016-11-05 Go Yoshizawa and Yukiko Nishimura gave a presentation at the Japan Society for Research Policy and Innovation Management 【大学】【国内学会】【oral presentation】

2016-10-08 Yukiko Nishimura gave a presentation at the REASE working group, University of Tokyouniverisity】【JRARE】

2016-08-28 ASrid organized the J-RARE research meeting 【MHLW funded research】【JRARE】

2016-08-26 Yukiko Nishimura gave a presentation at the Department of Research and Development of Next Generation Medicine, Kyushu University【univerisity】【presentation】

2016-07-01 ASrid was offered a subsidy from MHLW research grant【MHLW funded research】【JRARE】

2016-04-24  Yukiko Nishimura participated in the panel discussion, World OD Congress 2016 【international conference】【panel discussion】


Status of Research Review at ASrid