Report on Patients and Families with COVID-19 Infections (Preliminary Report) has been published.
This report contains the preliminary report of (1) the Survey on the Impact of COVID-19 Infection on Patients and Families with NANBYO (Rare and Intractable Diseases) and (2) the Survey on the Impact of COVID19 Infections on Patient Groups and Regional Centers with NANBYO (Rare and Intractable Diseases).
These contents are based on the report from a panel discussion at the NANBYO Forum 2020 held on November 7, 2020.
Further analysis will be performed and a final report will be prepared at a later date. Some of the results of this survey will be made public through the Rare Disease Day JAPAN 2021 and other events.
NANBYO Forum 2020 (in Japanese): http://www.nanbyo.sakura.ne.jp/forum2020/index.html