ASrid was offered a subsidy from Propulsion Program of Knowledge sharing and Public understanding about Research Ethics funded by AMED in FY2016.
Research Project:The design and diffusion of interactive workshop for utilizing rare and intractable disease patients' point of view and their knowledge for research and development of genome medicine
Project Leader: Shun EMOTO
http://www.amed.go.jp/koubo/040120161005_kettei.html (in Japanese)