ASrid hold a debrief meeting (FY15-16) about J-RARE project (Representative; Soichi Ogishima ; Soichi Ogishima (ASrid, Tohoku University), funded by MHLW)
Reserach Project:Building a platform for integrating PHR, fundamental knowledge and evaluation standards about QOL research related to NANBYO (rare and intractable diseases) on J-RARE, which developed by NANBYO patients in Japan
Venue: TKP Tokyo Yaesu Conference Center (Chiyodaku, Tokyo)
J-RARE Website: https://j-rare.net/