An article was published in the "Jikkenigaku" (Journal of Experimental Medicine). (Vol 38, No 19).
Yukiko Nishimura, "Trends in overseas patient organizations in the field of rare diseases - Advocacy for new coronavirus infections,"the "Jikkenigaku" (Journal of Experimental Medicine), Vol 38, No 19, 2020, P3239.
the "Jikkenigaku" (Journal of Experimental Medicine):https://www.yodosha.co.jp/jikkenigaku/book/9784758125383/ (in Japanese)