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News

  • 2026-09-30 ASrid held the 12th general assembly.
  • 2026-09-22 Accepted our paper by Advances in Therapy.
  • 2026-09-16 Served as a panelist at the DIA Patient Engagement Community 2026 2nd Information Exchange Meeting,
  • 2026-09-15 JRARE regular meeting was held.
  • 2026-09-13 Provided pro bono support to the patient association.
  • 2026-09-09 Discussion with students at Osaka Meisei High School.
  • 2026-09-08 Joined the Aozora Republic Executive Committee.
  • 2026-08-28 Participated in the Kobayashi Pharmaceutical Blue Bird Foundation Summit.
  • 2026-08-26 Attended the “Research on Amyloidosis” Group Meeting
  • 2026-08-23 Participated in the “Ganbare Republic” Summer Camp.
  • 2026-08-07 [Co-hosted Event] We Held the XLH Talk
  • 2026-08-05 Participated as a member of a steering committee organized by a company.
  • 2026-08-05 We have published the “Seven Principles for Patient Organizations” regarding participation in academic conferences and booth exhibitions.
  • 2026-08-04 Launch the second phase of the Kumamoto Support Campaign.
  • 2026-07-31 Participated in the NMOSD Charity Concert in Sapporo.
  • 2026-07-30 Released the official RDD Japan 2026 movie.
  • 2026-07-30 Published the RDD 2026 event report.
  • 2026-07-30 Launch the Kumamoto Support Campaign.
  • 2026-07-28 We took high school students to a lecture as part of the RDD Study Tour.
  • 2026-07-27 Lectured at National Institute of Technology, Tsuruoka College.
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