Appointed as Outreach Partner of ECRD 2024.
Shun Emoto has been appointed as an outreach partner of ECRD2024.
ECRD2024: https://www.rare-diseases.eu/
Outreach Committee Members：https://www.rare-diseases.eu/programme-7/#:~:text=Outreach%20Committee%20Members
ECRD (European Conference on Rare Diseases) is the largest patient-driven policy-making event for rare diseases in Europe.
More than 1,000 participants from industry, government, and academia from around the world will discuss systems and policies surrounding patients and families affected by rare diseases.
The event will be held on May 15-16 in Brussels, Belgium, and can be attended online.
Enter "ECRD24_15%_Partners" in the "Enter voucher code" field on the online registration page to receive a 15% discount.
https://www.rare-diseases.eu/register/
ASrid will also be presenting a poster at ECRD2024 on a survey on quality of life of patients and families with hereditary ATTR amyloidosis from the perspective of collaboration among various stakeholders.