An article by ASrid researcher, Shun Emoto, was published in the journal Health Sciences, Vol 62 (8).
Utilization of J-RARE: Listening to the voices of patients with rare and intractable diseases
Shun Emoto (Researcher, ASrid) (in Japanese)
The journal Health Sciences, Vol 62 (8):http://shop.kyorin-shoin.co.jp/shopdetail/000000000655/