ASrid held the first Rare Disease Day (RDD) press seminar at RDD Japan. Many media stakeholders participated in that seminar.

Rare Disease Day (RDD) 2018 Press seminar "Towards Improvement of QOL of Rare / Intractable Disease Patients "TSUNAGARU CHIKARA -Take Action Now- "

Organizer: RDD Japan hosting secretariat, co-sponsored: Pfizer Inc.

Venue: Otemachi Sankei Plaza

Program:

• Introduction of the History of Rare Disease Day Japan

Yukiko Nishimura, Chief Secretariat of RDD Japan

• The current situation surrounding pediatric rare diseases - Treatment of mitochondrial disease as an example

Kei Murayama, Chiba Children's Hospital

• The current state of international collaboration in the rare disease area

Soichi Ogishima, Tohoku University Tohoku Medical Megabank Organization

• Activities of RDD2018

Overview of RDD 2018 in Japan and RDD Tokyo: Yukiko Nishimura

RDD Hanno (Saitama): Mei Wada, Nimokaka Club (Association of Parents with Children with Difficulties in Infants)

RDD Saitama: Satomi Ohki, Patient Association of Central Diabetes insipidus (CDI)

RDD Chiba: Kei Murayama, Chiba Children's Hospital

• Pfizer's Approach to the Rare Disease Area

Kazuhiro Kanmuri,  Clinical Research Division, Pfizer Inc.