Yukiko Nishimura, the president of ASrid, and Shun Emoto, the researcher of ASrid, had poster presentations at the 9th ECRD 2020 (European Conference on Rare Diseases & Orphan Products), respectively.

1) Rare Disease Day Activity in Japan ~Social awareness campaign by various organizers

Yukiko NISHIMURA, Masatoshi IWASAKI, Shun EMOTO and RDD Japan Secretariat Office (NPO ASrid)

2) From research to practice: distal myopathy patients‘ HRQoL and their need for assistance and care

Go YOSHIZAWA, Shun EMOTO¹, Yuki WAKAMIYA², Yuriko ODA² and Yukiko NISHIMURA¹　(¹NPO ASrid and ²lNPO PADM)

3) Patients’ impressions of a clinical study/clinical trial and factors contributing to the impressions: A questionnaire study

Shun EMOTO¹, Kota NINOMIYA^{1, 2} and Yukiko NISHIMURA¹ (¹NPO ASrid, ²National Institute of Public Health)

ECRD Website:https://www.rare-diseases.eu/