2024年5月15日から16日にかけて実施された、ECRD 2024 (European Conference on Rare Diseases & Orphan Products)にて、江本駿がポスター発表を行いました。

Shun Emoto had poster presentations at the 11th ECRD 2024 (European Conference on Rare Diseases & Orphan Products), respectively.

Collaborative Patient Research among Multiple Stakeholders: Health-Related Quality of Life and Associated Factors  in Patients with Hereditary Transthyretin Amyloidosis

Shun Emoto1, Aiko Miura2, Kunihiro Nishimura1, Tomoko Sekiya3, Yukiko Nishimura1

1NPO ASrid; 2Alnylam Japan K.K.; 3Division of Clinical Genetics, Kanazawa University Hospital

ECRD Website:https://www.rare-diseases.eu/