RD Asia Conference (2nd Rare Disease Asia Conference 2016）にて、弊法人西村由希子理事長がWorkgroupのモデレーターとして参加いたしました。

Concurrent Plenary Workgroup Discussions

Workgroup 1: Patient Support Organisations

Facilitators:

  • Ms Yukiko NISHIMURA (ASrid, Japan)
  • Mr Tateo ITO (Japan Patients Association & HOP, Japan)
  • Ir. Yee Seng LEE (Malaysia Lysosomal Disease Association, Malaysia)
  • Dato’ Hatijah AYOB (Malaysian Rare Disorders Society, Malaysia)
  • Mr Edwin GOH (Hemophilia Society of Malaysia, Malaysia)
  • Mr Ekawat SUWANTAROJ (Thai Hemophilia Patient Club, Thailand)
  • Ms Preeya SINGHNARULA (Thai Rare Disease Foundation, Thailand)
  • Ms Sherena LOH (Muscular Dystrophy Association (Singapore), Singapore)
  • Mr Kenneth MAH (Rare Disorders Society (Singapore), Singapore)
  • Mr David LIM (Pulmonary Hypertension Singapore, Singapore)

撮影：赤松秀樹氏（ホップ障害者地域生活支援センター法人事務局）