RD Asia Conference (2nd Rare Disease Asia Conference 2016)にて、弊法人西村由希子理事長がWorkgroupのモデレーターとして参加いたしました。
Concurrent Plenary Workgroup Discussions
Workgroup 1: Patient Support Organisations
Facilitators:
- Ms Yukiko NISHIMURA (ASrid, Japan)
- Mr Tateo ITO (Japan Patients Association & HOP, Japan)
- Ir. Yee Seng LEE (Malaysia Lysosomal Disease Association, Malaysia)
- Dato’ Hatijah AYOB (Malaysian Rare Disorders Society, Malaysia)
- Mr Edwin GOH (Hemophilia Society of Malaysia, Malaysia)
- Mr Ekawat SUWANTAROJ (Thai Hemophilia Patient Club, Thailand)
- Ms Preeya SINGHNARULA (Thai Rare Disease Foundation, Thailand)
- Ms Sherena LOH (Muscular Dystrophy Association (Singapore), Singapore)
- Mr Kenneth MAH (Rare Disorders Society (Singapore), Singapore)
- Mr David LIM (Pulmonary Hypertension Singapore, Singapore)
撮影:赤松秀樹氏(ホップ障害者地域生活支援センター法人事務局)