台湾・台北で開催されたAPARDO Summit 2019にて、弊法人理事長西村由希子がパネルディスカッションに参加し、日本の現状についてコメントしました。
Panel 1: Building APARDO Regional Alliance
Panel Discussion: How does collaboration advance rare diseases in the Asia-Pacific region?
Facilitator: Durhane Wong-Rieger
Panelists:
Ritu Jain (APARDO)
Rachel Yang (CORD, China)
KP Tsang (HK Rare Disease Alliance)
Yukiko Nishimura (Asrid, Japan)
Lisa Foster, NZORD, New Zealand),
Ramaiah Muthyala (IORD, India)
Panel 3: Global Initiatives for Rare Disease
Facilitator: Rachel Yang
Presenters: Ritu Jain Yukiko Nishimura Matthew Belgarde Durhane Wong-Rieger
APARDO Summit:https://www.apardo.org/2019-summit-taiwan