10th European Conference on Rare Diseases & Orphan Products (ECRD 2020) のポスター発表が優秀演題賞に選ばれ、Orphanet Journalに掲載されました。

From research to practice: distal myopathy patients‘ HRQoL and their need for assistance and care

　Go YOSHIZAWA, Shun EMOTO¹, Yuki WAKAMIYA², Yuriko ODA² and Yukiko NISHIMURA¹　(¹NPO ASrid and ²lNPO PADM)

Orphanet Journal; https://ojrd.biomedcentral.com/track/pdf/10.1186/s13023-020-01550-1.pdf