• 2017-02-09 Yukiko Nishimura had a presentation at the 3rd IRDiRC conference
• 2017-02-06 RDD Secretariat office (inside ASrid) issue a press release about RDD 2017 in Japan
• 2017-02-04 Kunihiro Nishimura had a presentation about the introduction of ASrid, Rare Disease Day, and J-RARE at the training workshop organized by Tokyo Rare and Intractable Diseases Support Center.
• 2016-12-20 ASrid was offered a subsidy from AMED reserach grant
• 2016-11-20 Shun Emoto conducted a presentation at a board meeting of Achondroplasia patient and family group
• 2016-11-19 Yukiko Nishimura facilitated the workgroup discussion at RD Asia Conference 2016
• 2016-11-15 Rare Disease Day Japan Secretariat office (inside NPO ASrid) put up the exhibition booth, and also moderated the chat session at 13th DIA Japan annual meeting.
• 2016-11-11 Yukiko Nishimura gave a presentation at the inaugural meeting, NGO Committee for Rare Diseases
• 2016-11-05 Go Yoshizawa and Yukiko Nishimura gave a presentation at Japan Society for Research Policy and Innovation Management
• 2016-10-10 Yukiko Nishimura and Shun Emoto gave presentations at Silver-Russel Syndrome patient group event
• 2016-10-08 Yukiko Nishimura gave a presentation at the REASE woking group, University of Tokyo
• 2016-09-09 Guideline for the Cooperation and Collaboration of Research (for Patient Group) is now available.
• 2016-08-28 ASrid organized the J-RARE research meeting
• 2016-08-26 Yukiko Nishimura gave a presentation at the Department of Research and Development of Next Generation Medicine, Kyushu University
• 2016-08-20 Masatoshi Iwasaki gave a presentation at JAMAA (Japan Marfan Association) event
• 2016-07-01 ASrid was offered a subsidy from MHLW reserach grant
• 2016-05-30 Yukiko Nishimura participated in the panel discussion, ECRD 2016
• 2016-05-30 Masatoshi Iwasaki had a poster presentation at ECRD 2016
• 2016-04-24 Yukiko Nishimura participated in the panel discussion, World OD Congress 2016
• 2016-04-01 Guideline for the Cooperation and Collaboration of Research (3rd version) is now available.

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