News (39/46) | 特定非営利活動法人ASrid

News

2019-08-01 Lectured on NANBYO for elementary school students and parents at Peptide Dream Co.
2019-07-28 Participated in the NCD Alliance Japan workshop
2019-07-27 Organized ODOD2019 workshop
2019-07-24 Participated PPI Consortium in Japan launch meeting, as an initial member
2019-07-20 Participated in study meeting, "Let's learn for patients", as one of organizers
2019-07-19 Lecture at Kobe Kaisei junior and high school
2019-07-13 Participated in Pelizaeus-Merzbacher disease and related disorders research seminar as a research collaborator
2019-07-01 Patient and Public Involvement Consortium in Japan was established
2019-06-17 Lecture at Osaka Meisei High School
2019-06-07 Released the implementation report about Surprise project
2019-06-07 Implemented Surprise project for rare disease patient
2019-05-11 Presentation at Rare Diseases International meeting
2019-05-02 Facilitated the group discussion at the ICOSEP Annual Membership Meeting 2019
2019-04-12 Presentation at World Orphan Drug Congress USA 2019
2019-04-11 Patient and family talk session at RDD Tokyo was featured at Medical Note
2019-04-01 Shun EMOTO was assigned to ASrid full-time researcher
2019-03-23 Participated in study meeting as one of organizers
2019-03-16 Presentation at RDD University of Tokyo , Graduate School of Pharmaceutical Sciences
2019-03-02 Presentation at RDD Aozora-Republic
2019-02-28 Organized introduced Oral History Project at RDD Tokyo