News (36/46) | 特定非営利活動法人ASrid

News

2020-07-09 Invited lecture at Study Group Meeting
2020-07-03 ASrid cancels ODOD2020 workshop
2020-07-01 Invited lecture at Annual Meeting of the Japanese Society of Toxicology
2020-06-30 Survey of "A study on the QOL of children under medical care and their families in a medical short-term care facility” is now available
2020-06-29 Participated the WHO Focus Group Discussion
2020-06-26 J-RARE regular meeting was held
2020-06-17 The interview article was posted on the NCD Alliance Japan website
2020-06-01 The World Index of Patient Groups for Rare Diseases (WINPR), a website that allows you to cross-search Japanese and foreign patient organizations by disease name in each country's language, is now available.
2020-05-30 ASrid/RDD Japan secretariat office organized RDD Tokyo
2020-05-29 Preliminary results of the survey of "A study on the QOL of children under medical care and their families in a medical short-term care facility” are now available
2020-05-15 Presentation at ECRD 2020 conference (3 posters)
2020-05-11 Recommendations from overseas organizations (NORD and EURORDIS) related to COVID-19 are summarized.
2020-05-10 The manuscript was published in the Gene Medicine MOOK No. 35
2020-05-04 The Economist re has been added to "International Reports on NANBYO (Rare and Intractable Diseases)" page
2020-04-25 RDD Tokyo online event will be held on May 30
2020-04-10 J-RARE steering committee was held
2020-03-26 J-RARE regular meeting was held
2020-03-14 Participated in IRDiRC Web meeing
2020-03-09 Participated in the evaluation committee on JPA support program
2020-02-29 Released the statement about the deferment of RDD2020 Tokyo event