News (32/46) | 特定非営利活動法人ASrid

News

2021-07-16 Presentation at the 3rd DIA Japan Patient Engagement Webinar
2021-07-08 Lecture at Osaka Meisei High School
2021-07-07 Mr. Kazuhiko Mori has been appointed to the ASrid Advisory Board.
2021-07-01 The final version of the "Survey on the Impact of Novel Coronavirus Infection (COVID-19) on Patient groups/associations with Rare and Intractable Diseases" conducted by ASrid is now available.
2021-07-01 APARDO directors (2021-) are listed on the website.
2021-06-30 Online Roundtable Discussion on "Research on the Impact of COVID-19 on Patients and Families with Rare and Incurable Diseases" is now available.
2021-06-24 The final version of the "Survey on the Impact of Novel Coronavirus Infection (COVID-19) on Patients and Families with Rare and Intractable Diseases" conducted by ASrid is now available.
2021-06-08 J-RARE regular meeting was held
2021-06-08 A comprehensive patient exploratory survey on Glycogenic Disease Type 1a has been conducted and a list of national medical institutions has been compiled.
2021-06-02 Presentation at the Pfizer in-department seminar
2021-05-26 Participated in the RDI membership meeting
2021-05-07 The preliminary version of the "Survey on the Impact of Novel Coronavirus Infection (COVID-19) on Patients and Families with Rare and Intractable Diseases" conducted by ASrid is now available.
2021-04-30 Participated in RDD Global Steering Committee
2021-04-23 Presentation at the 2nd DIA Japan Patient Engagement Webinar
2021-04-20 The Conflict of Interest Management Committee was held.
2021-04-04 Part of the COVID19 survey conducted by ASrid was published in a weekly magazine.
2021-03-29 Participate in the working group of the Inclusive Academic Project (Inclusive Design in Science Education Environment).
2021-03-28 Presentation at the 5th Annual Meeting of HAE Forum
2021-03-26 Publish a report; "The contributions of the intermediate organization -MHLW’s "daytime activity support” to revise the fees for welfare service for persons with disabilities"
2021-03-21 Review meeting with high school students who held RDD2021