News (30/46) | 特定非営利活動法人ASrid

News

2021-12-26 J-RARE steering committee was held.
2021-12-24 Organized a webinar for high school students held on RDD2022
2021-12-24 ASrid Cooperated in a dialogue project hosted by a company.
2021-12-24 【Press Release】Announcement of STEP (Strategic Translational Action for Empowering Patients) Establishment, Information Community for Rare Disease Stakeholders
2021-12-21 Organized a webinar for high school students held on RDD2022
2021-12-21 Presentation at the 80th Annual Meeting of the Japanese Society of Public Health.
2021-12-20 Organized a webinar for high school students held on RDD2022
2021-12-16 Organized Study tour for RDD high school students (Sakata-Nishi high school)
2021-12-15 Organized a webinar for high school students held on RDD
2021-12-07 J-RARE regular meeting was held
2021-11-19 Presentation at the 9th conference for Japan NANBO Medical Network
2021-11-13 Organized Study tour for RDD high school students (Kakogawa Minami high school)
2021-11-07 Report on the Results of the Questionnaire Survey on Employment of People with Intractable and Chronic Diseases (First Report)" has been released
2021-11-06 Organized as an executive committee organization at the National Forum on Intractable and Chronic Diseases 2021 (NANBYO Forum 2021),
2021-11-05 An article was published in the "Community Care"
2021-11-04 Organized Study tour for RDD high school students (Kobe Kaisei high school)
2021-11-01 Presentation at PPI JAPAN Dialogue Meeting
2021-10-29 Presentation at the 39th Annual Meeting of the Japanese Society of Neurological Therapeutics
2021-10-25 Session Chair/Moderator for the 18th DIA Japan annual meeting 2021
2021-10-24 Presentation and attended the panel discussion at the Global Patient Advocacy Leadership Summit: Asia Pacific Regional Session