• 2022-07-07 Discussion with students at Osaka Meisei High School
• 2022-07-01 Presentation at ECRD 2020 conference (2 posters)
• 2022-06-30 [Press Release] STEP LEARNING Website, an Information Portal Site Responding to the "Want to Know" of People with Rare and Intractable Diseases, is Now Open.
• 2022-06-25 Lecture at the 69th Annual Meeting of the Japanese Society of Child Health
• 2022-06-25 [Press Release] "T-Style Read Aloud Instructional App for web" for teaching and supporting dyslexia is now available.
• 2022-06-15 Participated in the RDI membership meeting
• 2022-06-14 J-RARE regular meeting was held
• 2022-06-13 Lecture at Osaka Meisei High School
• 2022-06-04 Organized the joint art exhibition and interactive art appreciation workshop with the 64th Annual Meeting of the Japanese Society for Child Neurology.
• 2022-05-26 【Press Release】MOU Signed with PPeCC
• 2022-05-25 Lectured at the Japan Pharmaceutical Manufacturers Association, Committee for Promotion of Patient Group Collaboration.
• 2022-05-11 【Press Release】"Ne, Asobo," an Information Portal Site for Play for Severely Mentally and Physically Handicapped Children and Children in Medical Care, is Released
• 2022-04-22 Article published in Rare Disease and Orphan Drugs Journal.
• 2022-03-30 Participated as a panelist at the PhRMA PAC Roundtable.
• 2022-03-29 RDD Tokyo extravaganza: Dialogue planned and conducted.
• 2022-03-28 Participated on Webinar "Radio PPI" at the 6th Patient and Public Involvement Study Group
• 2022-03-24 The Japanese text of the resolution adopted by the UN General Assembly on December 16, 2021 is now available.
• 2022-03-23 Participated in the evaluation committee on JPA support program.
• 2022-03-22 Article in AMED Public Relations Magazine.
• 2022-03-20 APEC ACTION PLAN ON RARE DISEASES is now available in Japanese

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