• 2022-12-16 Lecture at Sakatanishi high school.
• 2022-12-15 Organized Study tour for RDD high school students (National Institute of Technology, Tsuruoka College).
• 2022-12-12 Presentation at the Pharmaceutical company's Patient Day event.
• 2022-12-12 RDD Japan 2022 Official Movie is now available.
• 2022-12-11 Participated in Annual meeting of Pelizaeus-Merzbacher disease and related disorders research group as a research collaborator
• 2022-12-07 GIST Advisors Meeting Report is Now Available
• 2022-12-06 J-RARE regular meeting was held.
• 2022-12-06 ASrid Cooperated in a dialogue project hosted by a company.
• 2022-12-02 Held a RDD 2023 Sponsor Day.
• 2022-11-30 Participated in IRDiRC meeting
• 2022-11-30 Served as a facilitator at the 40th Pharmaceutical Industry Patient Group Seminar.
• 2022-11-26 Presented several domestic cases at the APARDO Conference 2022
• 2022-11-26 Presentation at the 33th conference for the Japanese Association for Human Auxology
• 2022-11-22 Organized Study tour for RDD high school students (Kobe Kaisei high school)
• 2022-11-18 Presentation at the 10th conference for Japan NANBO Medical Network
• 2022-11-18 Presentation at the 10th conference for Japan NANBO Medical Network (educational session)
• 2022-11-12 Published the materials at the exhibition session of the NANBYO Forum 2022.
• 2022-11-12 Organized as an executive committee organization at the National Forum on Intractable and Chronic Diseases 2022 (NANBYO Forum 2022),
• 2022-11-07 Participated in Annual meeting of Pelizaeus-Merzbacher disease and related disorders research group as a research collaborator
• 2022-11-04 Participated in the patient advisory meeting

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