Yukiko Nishimura gave a lecture at the Rare Disease Support Academic Consortium (13th Annual Meeting of the Japanese Rare Disease Medical Network, 30th Annual Meeting of the Japanese Rare Disease Nursing Society, 11th Neurological Rare Disease Rehabilitation Research Meeting).
Symposium 8: Focusing on Rare Diseases!
Chair: Chika Tanemura (Mukogawa Women's University)
Co-creation between the patient side and the researcher side ~ From the perspective of a mediation organization in the field of rare and intractable diseases
Yukiko Nishimura (ASrid, a Specified Nonprofit Corporation)
Connecting the voices of people with rare diseases and opening up their lives – Rethinking support from the viewpoint of survivology
Mari Toda (Kyoto Koka Women’s University / Ritsumeikan University)
What a mother of a daughter with type II collagen disorder can do, what I want to convey through creating picture books, and a bright future
Madoka Otsuka (Association of Type II Collagen Disorder Patients and Families)