An article by Yukiko Nishimura and Shun Emoto, entitled “Empowerment of multi-stakeholders in NANBYO ――Collaboration with patient organizations and the role of intermediary organizations in diagnostic lags and diagnostic losses,” was published in the Journal of Clinical and Experimental Medicine as part of the special issue on advances in rare genetic diseases and connecting science with society.
Journal of Clinical and Experimental Medicine::https://webview.isho.jp/journal/detail/abs/10.32118/ayu296100956