A photo exhibition by Marina Umezu—an EB patient who spoke at this year’s RDD Tokyo “Voices from the Frontlines” session—was featured on the website of DEBRA International, the global organization for EB patients. Yukiko Nishimura wrote the English-language article after visiting the exhibition in person.
It was a wonderful opportunity to raise overseas awareness of our activities in Japan. I would like to express my deepest gratitude to Ms. Umezu for her kind permission and to Ritu Jain at DEBRA International for publishing the article.
RDD Tokyo patients testimonial session：https://www.youtube.com/watch?v=xByaoGYUU2c
