Shun Emoto, a researcher of ASrid, had a a presentation at RDD Mie.

Title: "TSUNAGARU CHIKARA -Take Action Now- "
Venue: Kuwana Media Live  (Kuwana, Mie)

RDD Mie: http://rarediseaseday.jp/2018/officials/mie (in Japanese)

Mie group for patients with rare disease: http://nantomomie.cocolog-nifty.com/ (in Japanese)