2020年5月14日から15日にかけて実施された、ECRD 2020 (European Conference on Rare Diseases & Orphan Products)にて、弊法人理事長西村由希子および研究員江本駿が、それぞれポスター発表を行いました。

1) Rare Disease Day Activity in Japan ~Social awareness campaign by various organizers

Yukiko NISHIMURA, Masatoshi IWASAKI, Shun EMOTO and RDD Japan Secretariat Office (NPO ASrid)

2) From research to practice: distal myopathy patients‘ HRQoL and their need for assistance and care

Go YOSHIZAWA, Shun EMOTO¹, Yuki WAKAMIYA², Yuriko ODA² and Yukiko NISHIMURA¹　(¹NPO ASrid and ²lNPO PADM)

3) Patients’ impressions of a clinical study/clinical trial and factors contributing to the impressions: A questionnaire study

Shun EMOTO¹, Kota NINOMIYA^{1, 2} and Yukiko NISHIMURA¹ (¹NPO ASrid, ²National Institute of Public Health)

ECRD Website:https://www.rare-diseases.eu/