JRARE, born in September 2013 as a patient information platform for rare disease areas, has reached its 10th anniversary of being publicly available this month. To commemorate this milestone, patients' association representatives and researchers who have supported JRARE from its inception to the present day gathered together.

We looked back on the history of JRARE, introduced patient-led research, candidly discussed the challenges we have encountered, and shared our thoughts on future endeavors. Whether at the venue or online, both familiar faces and newcomers came together, exchanging updates and comments, making the event enjoyable and spirited.

JRARE will continue to move forward as a real patient-driven platform, working alongside those who wish to actively conduct research for their own needs and collaborate with patients on an equal footing.

JRARE: https://j-rare.net/