Along with RDD Month, a complete Japanese version of English materials considered to be useful to domestic stakeholders in the rare and intractable disease-related material area compiled by NPO ASrid, the parent organization of the Japan Organizing Secretariat, was created and released.
Many materials and papers are developed overseas, and we negotiated with those concerned about materials that seemed to be particularly useful and released them as Japanese materials.
There are 3 points to be released this time.

1) Rare disease guidelines compiled by IFPMA (International Federation of Pharmaceutical Associations)

2) Rare disease policy information compiled by IFPMA

3) An academic paper about Comparison of rare disease policies published in the Orphanet Journal

You can look through only Japanese or compare it with English expressions.
Please use it for your activities.

* I would like to express my deep appreciation to all those who have supported and cooperated with this initiative.

http://asrid.org/materials