Yukiko Nishimura participated as chair and speaker at Special Symposium 1 of the 42nd Annual Meeting of the Japanese Society of Neurological Therapeutics held in Chiba, Japan.

Special Symposium 1

"Treatment of ATTRv Amyloidosis: Perspectives from Industry, Government, Academia, and Patient Organizations"

Chairs:

• Yoshiki Sekijima (Department of Neurology, Rheumatology, and Collagen Disease, Shinshu University School of Medicine)
• Yukiko Nishimura (ASrid)

Speakers:

• Yukiko Nishimura (ASrid)
  "The Value of Stakeholders Gathering to Share Knowledge: A Perspective from an Intermediary Organization"
• Mitsuhiro Ueda (Department of Neurology, Graduate School of Medical Sciences, Kumamoto University)
  "Current Status and Challenges in the Management of Hereditary ATTR Amyloidosis"
• Naoko Kuroda (Tampopo Association)
  "What Patients Think, Hope, and Future Activities of the Patient Association"
• Seiya Miyata (Michishirube Association)
  "Introduction to Patient Association Activities and the Importance of Collaboration among Stakeholders"
• Aiko Miura (Medical Affairs Division, Alnylam Japan Co., Ltd.)
  "Evidence-Based Advocacy: The Importance of Patient Perspectives from a Corporate Viewpoint"
• Yosuke Yamada (Rare/Intractable Disease Control Division, Health Service Bureau, Ministry of Health, Labour and Welfare)
  "Changes and Current Status of Policies on Rare Diseases and Updates in the FY2024 Revision"

http://jsnt42.umin.jp/