Shun Emoto, a researcher of ASrid, had a presentation at the Japanese Society of Medical Networking for Intractable Diseases.

Title 1. The cooperative relationship between patient groups and researchers: Actual survey for revising the guideline of research cooperation and collaboration

Title 2. Rare Disease Day Japan: Progress in the past decades

Venue: Kyushu University (Fukuoka City, Fukuoka Pref.)

WEB: http://www.congre.co.jp/jsmnid2019/index.html (In Japanese)