In collaboration with the NPO PADM (Patients' Association for Distal Myopathy), ASrid has now conducted the " Survey on Needs for Care and Assistance of Patients with Distal Myopathy, which has been conducted twice since 2016. As a result of this survey, we have received the following comments: "I would be happy to do this! Care needs and solutions for patients with progressive muscle disease - Main symptom is muscle weakness in the limbs" was created and made available to the public through the website of the NPO ASrid.

These instructions can be downloaded by the public. Click here to download (PDF in Japanese): https://asrid.org/test_kaijo.pdf

J-RARE (in Japanese): https://j-rare.net/

NPO PADM (in Japanese): https://npopadm.com/