We are sending this message with great sadness that the NANBYO (rare and intractable diseases) community lost Mr. Nobuaki Kobayashi, the advisory board of ASrid. He passed away on July 10, 2022.

Mr. Kobayashi made a lasting contribution to the pediatric NANBYO by improving the medical treatment environment, proposing related laws and policies, building networks, and providing opportunities for patients and their families. In addition, he had given us a lot of advice on our activities from before we were established in ASrid until today and has supported us as a team member.

We express our deepest sympathies over the loss of him to his family. (board member and researchers, ASrid)