Yukiko Nishimura, the president of ASrid, had a presentation about J-RARE at the 17th Conference on CRC and Clinical Trials 2017 in Nagoya

Educational Session: ES-3

Academic-Industry-Patients efforts on clinical research and drug development in rare and intractable diseases areas that are difficult to develop

Yukiko Nishimura “Operation of a cross-disciplinary information platform undertaken by patient organizations and other professionals, and implementation of QOL survey research using the J-RARE”

17th Conference on CRC and Clinical Trials 2017 Website; http://crc2017.nu-camcr.org/ (in Japanese)